Adam’s Story

Adam’s Story


 

Adam

 Adam is four years old. He has hypotonia (low muscle tone) and has been diagnosed with a rare genetic disorder (SUCLA2-linked Mitochondrial DNA Depletion syndrome).

‘When he joined Whoopsadaisy in autumn 2013, Adam couldn’t sit on the floor or a stool unaided. During one of his first sessions the Conductor began to help him ‘walk’, moving his legs in a walking motion whilst I held him upright with the help of a stool on wheels. No-one else had ever tried it, nor been so confident that Adam should even entertain the idea of learning to walk. But Whoopsadaisy were committed from the start to helping him learn to sit, crawl, walk and become independent.

Soon, Adam could sit in a high chair, and for the first time ever the three of us could go out for a meal together as a family. He started communicating with gestures and to say a few words. We feel positive and hopeful for Adam’s future and Whoopsadaisy has played a big part in this.’(Lizbeth, Adam’s mum)

Adam (left) with Benji and Amelia, Under-fives Group

Adam (left) with Benji and Amelia, Under-fives Group

In autumn 2015 Adam started walking on his own. His mobility and independence have greatly improved: he can start and stop, vary his speed and change direction with ease. He can walk right across the room without falling and is starting to walk for longer distances outside.

 Adam can get up from his stool or the floor to a standing position unaided. He has mastered climbing wall bars, negotiating ramps and small flights of stairs. Adam loves art work, playing ball games and interacting with the other children. His speech is slowly improving and he is using more Makaton signs to express himself

 Adam will be leaving his Under-fives Group at the end of the summer 2016 term, ready to start school in September. We look forward to welcoming him at Whoopsadaisy Holiday Clubs and at ‘Saturday School‘ sessions, which will help him continue building his mobility, skills and independence, and participate as actively as possible in school life.