Our Children

Our Children

Our Children

Whoopsadaisy is a small Brighton-based charity dedicated to helping babies and children with cerebral palsy and other motor disorders to reach their full potential. Read about our amazing children and the progress they are making.

Ferris

Ferris has cerebral palsy. When he joined Whoopsadaisy at 18 months he was unable to sit unaided or crawl. Ferris initially attended the weekly under-fives group in 2009 and continued until he started school. He is now a regular at the Saturday School and Holiday Clubs. Ferris can now walk short distances unaided. His concentration has improved and he finds it easier to follow instructions. Ferris has impressed everyone by completing the Brighton mini-mile twice, using his rollator, along with his older sister, Carys, who also has cerebral palsy and attended Whoopsadaisy when she was younger.

Ferris really enjoys the Saturday sessions and the different topics. It provides respite for us as a family and gives is ideas for how to work with Ferris at home. Sessions are well planned and tailored to each child. Thank you for all your hard work! – Bethan, Ferris’s Mum

Ernie

Ernie is still waiting for a diagnosis but he has significant developmental delay and tightness in his muscles making movement difficult for him. Since joining Whoopsadaisy he has learnt to roll over, to crawl, to sit unaided on the floor, and to take his first steps with a rollator. Being able to get around by himself has made him more independent and less frustrated. Ernie is a confident and sociable little boy and really enjoys the company of the other children.

We don’t know where we would be with Whoopsadaisy. Ernie has developed so much, there are no words to express how much we appreciate the help we get. With the improvements we have already seen, we can’t wait for the next year to see how much Ernie can move forward and become a more independent, happier little boy. – Laura, Ernie’s Mum

Alfie

Alfie has a rare chromosome disorder called 17p13.3 microdeletion which means a small part of the genetic material that makes up his 46 chromosomes is missing, causing developmental delay and learning difficulties.

At 16 months Alfie could just about hold his head up. We were kind of in limbo land didn’t know what to do. We started coming to Whoopsadaisy once a week. Within a few weeks Alfie was sitting up by himself, and within six months he was crawling. So it really was a dramatic improvement in a short space of time. It was just the best thing that we could have found. Now Alfie is five, and he recently started walking independently. I don’t know what we would have done without you – Elana, Alfie’s Mum.

 

Lola

Lola has cerebral palsy affecting her whole body and has severe visual and hearing impairment. She has been attending Whoopsadaisy for five years. Lola is unable to hold her head up for more than a few seconds and cannot sit up without assistance. She communicates through facial expressions and making sounds. Recently she has become more focused and responds to requests more actively, ‘vocalising’ to confirm her choices.

My daughter Lola attends Whoopsadaisy in Preston Park twice a week with her mum Verity. The support they have given us over the years has been invaluable. – Richard, Lola’s Dad

Emily

Emily has not yet had a formal diagnosis but she has global developmental delay which means she has struggled to meet most of her developmental milestones such as sitting up, standing and walking. She joined Whoopsadaisy in 2013 but recently started school and now attends our Saturday Club.

Emily observes faces with great interest and often reaches out to touch people’s hair. Her strength, stamina and balance have improved, as has her attention span. She has become steadier and more confident and is also more vocal in the group. She wants to interact more with her family and also with her peers. – Emily’s mum